PATIENT GENERATED HEALTHCARE DATA IMPROVES REAL-WORLD STUDIES

 PATIENT GENERATED HEALTHCARE DATA IMPROVES REAL-WORLD STUDIES

Patient generated healthcare data enforces a rudimentary shift in a way to evaluate success in medicine – by looking at a series of clinical outcomes viewed through the eye of the health care team by considering the entire care experience with the patient.

The outbreak of Covid–19 was a major motive for the adoption of PGHD by researchers as a critical tool for understanding as it evolved. Patient registries continue to be pivotal in tracking the virus as part of industry and regulators need to understand the threat of virus and now, the impact of vaccines and treatments to mitigate it.

Here are few ways that gripping PGHD in epidemiologic studies which improve real-world studies going forward.

1) Exposing person-centric insights:

Routine health care datasets have been limited in the level of information they provide. Through collecting PGHD, an epidemiologist reveals information which is not easily accessible. Additionally, access to patient contributed data outside of clinical environments results in more varied data. By validating PGHD with other data sets, researchers can achieve greater holistic insight.

2) Reducing bias and false conclusions:

Bias and false conclusions are the outputs from the miscommunication of information and missing data. Incorporation of PGHD in studies offers a more complete picture of disease, treatment, outcomes to the researchers.

3) Enable evolution of precise medicines and personalized care:

Over the years, initiatives in precise medicine have been widely discussed but not yet brought to healthcare system beyond some oncology immunotherapies and rare disease treatments. As researchers continue to explore new applications for precise medicine, utilizing PGHD will be pivotal in measuring the success of treatments as studied.

Conclusion:

Looking forward, we continue to see real world epidemiologic and pharmacoepidemiologic studies evolve to deeper insights of subjects. Utilization of PGHD will be a prime mover in advancing the quality of research, and by extension the future of medicine and public health.

T.JAHNAVI

B.Pharmacy - IV YEAR

Student at Clinosol.